By Tara Boedigheimer
In 2011, when our son Drew was just two years old, we experienced every parent’s worst nightmare.
We were given the shocking and completely unexpected news, by a pediatric cardiologist, that our precious boy was critically ill with a very rare form of cardiomyopathy–and in need of a heart transplant. It was the only thing that could save his life. Not only that, he needed it immediately and the transplant program at Phoenix Children’s Hospital was very new and not approved by our insurance to handle Drew’s situation.